Hypermobility Resources

Hypermobile-Ehlers-Danlos Syndrome, Joint Hypermobility Syndrome and Hypermobility Spectrum Disorder – can all have hypermobile joints (now or in the past) and sometimes other issues related to connective tissue issues. Knowledge is power, but everyone with hypermobility is unique. Avoid getting overwhelmed by online information. Let your therapist guide you through what’s most relevant to your journey.

Here are some of Not Just Bendy’s recommended resources to kickstart your research. For tailored advice, ask your physiotherapist about where to focus. Note: This is not medical advice. Please consult your healthcare provider for personalized recommendations.

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physio chatting with client about pelvis anatomy
  • Facebook groups: EDS/Zebras for your local area and ask for recommendations
  • Ehlers Danlos Society Directory of professionals https://www.ehlers-danlos.com/healthcare-professionals-directory/
  • Physiotherapy practices with a reformer pilates gym.  Look at the website and call/email for ino.  Looking for a physio who works with older people or who treats complex conditions and chronic pain.
  • Unfortunately Not Just Bendy is unable to give out recommendations unless you are a current client

  • Cresta Fatigue Guide – excellent workbook for problem solving fatigue
  • Pacing activity ideas from www.PainManagement.org
  • Runkeeper app – measures distances walked.
  • Fitbit/ Apple Watch/Garmin etc– worn on the wrist these devices can measures daily steps, heart rate and sleep cycles.
  • Pedometer – to measure daily steps. Many smart phones have a built in pedometer (for iPhone: look in the Health app) and you can get more advanced options from the app store.
  • Sleep Tracker app
  • Activity Diary – can be used to record your activity, sleep and pain level. You can make your own, choose an app or download worksheets
  • Fall Detection – Apple Watch (on series 4 & 5 or above)
  • “Headspace” – www.headspace.com or download headspace phone app. Ten minute mindfulness meditations made simple. First ten meditations are free. Useful animations about the brain and negative thoughts.
  • Buddhify app
  • Smiling Mind app – also has meditations for children and adolescents
  • 1 Giant Mind app
  • “The Happiness Trap” or the comic version “The Happiness Trap Pocketbook” by Russ Harris are excellent publications that cover the basics of ACT (acceptance and commitment therapy) and mindfulness. www.actmindfully.com.au
  • Spotify music app – search for mindfulness, meditation or relaxation.

Please note: No responsibility is taken for any information provided on this site or any of the links listed. These links are not and do not imply specific individual medical advice. Please consult your own medical practitioner for advice to suit your personal circumstances.

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